Hey everybody. We have been having alot of fun here over Christmas break. Greyson had his buddy Campbell over to play wii yesterday and I visited with our friend Pam while Jim and Michele worked. Awwwwww. Anyway, the boys had a great time and I think Campbell was worn out from the wii. That thing will put it on you and leave you needing a nap for sure. :) We all had a great time and shared some lunch before they had to leave to go meet Jim. After that we hung out at the house and played wii and watched TV. The fun really began again at bed time. I need to work on a serious routine for Greyson at bed time now. We have somewhat of a routine but he has thrown a kink in it with his recent issues. He is scared all the time now at bedtime and says he has nightmares about the things in his head. (i.e.-spiders, zombies, monsters, Mr Meaty...etc) Now you need to know....it's not like we let him watch anything on TV that has anything to do with these things...but he still somehow gets them in his head as he says. His remedy is to watch Bee Movie since there is nothing scary about it. He claims it gets the bad things out of his head. Now before you all start thinking I am crazy you need to know. Understanding what he is telling me isn't always a cake walk as he speaks in his own language sometimes. Like when he tells me...I can't wear these pants! They make me feel normal! We think he means they do not feel good to him but that's just a guess on our part. So that being said, we try our best to figure out what he is meaning by what he says when things are squirrely and then we do what we think will help or fix it. Bad dreams and bad things in his head included. It's a crap shoot as far as we are concerned and we just hope we win. I think right now Bee movie will have to be worked into bed time one way or another. He freaks out if we ask him to go to sleep without it claiming that he can't get the bad things out of his head and that the nightmares will come. he isn't just being stubborn either....he is literally crying, sobbing, and freaking out. If we thought he was playing us we would just put our foots down but he is truly distraught and you can tell it. That's what people do not normally understand when they here stories like this. They assume he is just doing whatever to get his way. that's why taking him to OT at times is so refreshing and validating. You have a room full of mothers who are waiting on their children just like you and they sit there trading stories of tales just like the ones you have told time and time again. It is so validating to hear and reinforces you thoughts as to whether you are handling things the way you should. Michele had never taken Greyson to OT before this past Wednesday. She came home a different mom. A mom that realized that we are doing things the way we should. That we do make mistakes and that's ok since we are only human. You see....we have searched high and low to ensure that he is getting the best care and that we are knowledgeable on Aspergers and how to best handle certain situations. We have ordered and read book after book, we've gone to therapy weekly for over a year straight talking about each issue/challenge that comes up and how to best handle it. Now we have added Speech therapy at school along with OT there and he sees his EC teacher 3x's a week. We have a team of people who we talk to regularly to help keep us on track and doing what we need to do. Do we make mistakes? Yes...we do...what parents don't. Do we forget which ways are best to handle certain situations when are nerves are shot? Yes we do...again...what parent doesn't. But do we love him more than life itself and wish him the best life has to offer? Do we strive to ensure that he will lead a perfectly normal life regardless of his diagnosis? Yes, yes, yes.....So ...we carry on, and we learn his language, his little eccentric ways, and we cherish who he is as an individual. We hope to teach him love, compassion, and optimism in a world that seems a little out of whack. That is what we want for our son and we will go above and beyond to give him just that. Thank you to those who support our family...your kind words....your advice and stories of similar situations and most of all your love. Hugs....until next time.
Saturday, January 3, 2009
Nightmares & Bee Movie Drama...
Hey everybody. We have been having alot of fun here over Christmas break. Greyson had his buddy Campbell over to play wii yesterday and I visited with our friend Pam while Jim and Michele worked. Awwwwww. Anyway, the boys had a great time and I think Campbell was worn out from the wii. That thing will put it on you and leave you needing a nap for sure. :) We all had a great time and shared some lunch before they had to leave to go meet Jim. After that we hung out at the house and played wii and watched TV. The fun really began again at bed time. I need to work on a serious routine for Greyson at bed time now. We have somewhat of a routine but he has thrown a kink in it with his recent issues. He is scared all the time now at bedtime and says he has nightmares about the things in his head. (i.e.-spiders, zombies, monsters, Mr Meaty...etc) Now you need to know....it's not like we let him watch anything on TV that has anything to do with these things...but he still somehow gets them in his head as he says. His remedy is to watch Bee Movie since there is nothing scary about it. He claims it gets the bad things out of his head. Now before you all start thinking I am crazy you need to know. Understanding what he is telling me isn't always a cake walk as he speaks in his own language sometimes. Like when he tells me...I can't wear these pants! They make me feel normal! We think he means they do not feel good to him but that's just a guess on our part. So that being said, we try our best to figure out what he is meaning by what he says when things are squirrely and then we do what we think will help or fix it. Bad dreams and bad things in his head included. It's a crap shoot as far as we are concerned and we just hope we win. I think right now Bee movie will have to be worked into bed time one way or another. He freaks out if we ask him to go to sleep without it claiming that he can't get the bad things out of his head and that the nightmares will come. he isn't just being stubborn either....he is literally crying, sobbing, and freaking out. If we thought he was playing us we would just put our foots down but he is truly distraught and you can tell it. That's what people do not normally understand when they here stories like this. They assume he is just doing whatever to get his way. that's why taking him to OT at times is so refreshing and validating. You have a room full of mothers who are waiting on their children just like you and they sit there trading stories of tales just like the ones you have told time and time again. It is so validating to hear and reinforces you thoughts as to whether you are handling things the way you should. Michele had never taken Greyson to OT before this past Wednesday. She came home a different mom. A mom that realized that we are doing things the way we should. That we do make mistakes and that's ok since we are only human. You see....we have searched high and low to ensure that he is getting the best care and that we are knowledgeable on Aspergers and how to best handle certain situations. We have ordered and read book after book, we've gone to therapy weekly for over a year straight talking about each issue/challenge that comes up and how to best handle it. Now we have added Speech therapy at school along with OT there and he sees his EC teacher 3x's a week. We have a team of people who we talk to regularly to help keep us on track and doing what we need to do. Do we make mistakes? Yes...we do...what parents don't. Do we forget which ways are best to handle certain situations when are nerves are shot? Yes we do...again...what parent doesn't. But do we love him more than life itself and wish him the best life has to offer? Do we strive to ensure that he will lead a perfectly normal life regardless of his diagnosis? Yes, yes, yes.....So ...we carry on, and we learn his language, his little eccentric ways, and we cherish who he is as an individual. We hope to teach him love, compassion, and optimism in a world that seems a little out of whack. That is what we want for our son and we will go above and beyond to give him just that. Thank you to those who support our family...your kind words....your advice and stories of similar situations and most of all your love. Hugs....until next time.
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